Wednesday, July 29, 2009

Whine Time

I just need to whine. A lot. I don't normally blog like this, but I need to write and whine for a moment.

This fatigue is so constant and so intense that I just can't stand it much longer. When I wake up, either after a good night's sleep or a nap, I feel like a sumo wrestler is sitting on top of me. It takes a while for him to get hungry and let me up.

I had to cancel the appointment with the endocrinologist for my thyroid because he's not in my health insurance network. After almost two hours on the phone with insurance and trying to find a new doctor who could see me in a timely manner (one doctor's next opening was October, on November, one next February), I got a new appointment with a new doctor. But I broke down in tears on the phone at one point. Waaaaaa And I have good health insurance!

Humidity is 87% today. "Air you can wear" as one weatherman called it. I can't even fantasize about getting relief by traveling to Seattle (my sympathies go out to all my Washington State friends).

Okay, I'm done whining. I know there are lots of people who have much more severe problems (losing jobs, losing homes, deaths of loved ones, impending surgery) and to you I send my love. Thanks for letting me have a moment of "poor me" time. I'm done. Now I'll go take a shower and brew a pitcher of iced coffee.

And yet the flowers bloom.



  1. (((((((((((JOAN))))))))))) Dear Joan.....I feel so terrible to know you're fatigue is so horrible & literally incapacitating you. :o( I am glad that you are finally sharing how you really feel with does help the rest of us, hun. I don't consider it whining at all either, so please don't think of it as such. May I ask what meds you have tried for your fatigue? Maybe it's time to think about LDN, Joan. I have more energy than I ever had. Love you, dear, and praying for you. I wish to God I could help you!!! ....Tag

  2. Joan---

    If I had such fatigue, I'd be venting too. Life can be hard enough WITHOUT a debilitating condition.

    You're our friend, and we have MS too, so we totally understand and support your need to vent.

    Love you lots and always here to listen----



  3. I will not even try to be the voice of reason. As I have told a few other fellow MSers you have all the right in the world to whine, and bitch, and scream, and cry, and be angry, and anything else you can think of. You had the right thrust upon you the day you were diagnosed.

    Everyone needs to vent every now and again and us bloggers have the perfect medium for it. Just don't forget what Jen so eloquently said above,

    "You're our friend, and we have MS too, so we totally understand and support your need to vent."

    Yea I know she said it better, and more succinctly, than I did but mine is edgier (Is that a real word??). Just don't forget we all feel your pain, to one degree or another. Here's hoping you get to feeling better soon!


  4. Whine away. We are hear to listen. We've all been down the fatigue route and know exactly what you are going thru.
    Enjoy your ice coffee and spike it if necessary ! LOL
    Hang in there and don't be so hard on yourself.

  5. Joan! I hope I was included as a Washington friend and yes, it's on the way to 107 degrees. In my group of friends we have get togethers called "wine and whining"! It's the best therapy. I think it is very good - you set an example for all of us -that it's completely fine to let down and vent. We will always know others far worse off than us but that doesn't mean that we can't get comfortable on the pity pot now and again. We just have to know that it will work out - in the meantime - whine away! I'll be cheering you on. Nancy D

  6. Hey there friend!

    Oh I am so sorry you are feeling this way. Yeah...the fatigue is a bitch. It can make you feel depressed and you have every right to vent and talk about this. No need to keep things all bottled up inside.

    I am feeling like Rip Van visiting all my favorite many things I have missed.

    At any rate...know that I am thinking of you. I hope you feel better soon.

  7. Joan,

    Talk about it!! Share with us, your friends! I echo what Jen and the others have said. We are here for you.

    I've been rather 'off' lately and Jen has graciously listened to my "whoa me's." Let's just say that today was the 8th day of IVSM in the past 6.5 weeks, including 15 days of oral steroids in between. Boo!!

    Please whine and vent as much as necessary. We're here for you.

  8. Sometimes you just gotta whine. Fatigue is one of my worst symptoms as well. Sometimes I sleep 12 hours and still want a 2 hour nap. Sometimes I just never get fully awake. Everything feels heavy.

    I hope you can get out from under that weight. Hopefully the ehat and humidy will let up as well and you will get some relief.

  9. Dear Joanie & Friends,

    What a wonderful support group you all are to each other! Your friends said it best in that your feelings are valid & you have every right to voice them. And to make matters worse you have the problems dealing with appointments & managed care & wouldn't it be nice if all of the doctors coordinated with each other?

    I pray that you each feel Grace in your life when you need it. Thanks for being such a good support to my wonderful sister!

    Love & Blessings...

  10. Whine! go for it! It really really sucks! I know the heat is probably compounding the problem. It always gets me. We've all been the point where we are so tired of being sick and tired. Although I never see it at the time, it's good to remember down the road that "this too shall pass". Hang in there...and add a few choice words to the really makes it feel better.

  11. WOW! THANKS EVERYONE. It's great to have such supportive peeps! I love you all.