My thanks to the seven people who visited the Multiple Sclerosis Chat room last Friday to discuss self-advocacy, or being the "squeaky wheel." We reviewed notes from the NMSS page that gives tips for standing up for yourself. As always, we discussed a variety of other topics and had more than a few laughs.
We had tasty "virtual" treats courtesy of Nancy D, who always brings the best imaginary food. Kathy (the 'rebif' Kathy) visited after a long respite, and it was good to reconnect with her. Welcome back, Kathy!
Lisa stopped by to tell us about the newly-FDA-approved oral medication by Acorda called Ampyra, which is approved to treat mobility problems. This is NOT an oral disease-modifying drug (DMD), unfortunately; rather it is approved for treating one symptom. Details are outlined in her blog at Brass and Ivory Be sure to check it out.
Susan has a personal assistant that she found through Griswold Special Care in Wilmington. Griswold is a national non-medical home care company, and details can be found on their web page at http://www.griswoldspecialcare.com/index.php
Sonia found a personal trainer through her physical therapist, and it seems to be helping her. This is definitely a good thing to look into.
We send our healing thoughts to Dreamer, who is recovering from a bicycle accident. Sadly, her accident happened while she was training for the MS bike fundraiser coming in a few months.
Also, healing thoughts go to Gina, who is struggling with mini-strokes.Thanks again to everyone for a fun, informative chat.
Next chat: Feb 12 - Virtual Valentine's Party. Virtual chocolate is welcome.