Wednesday, May 23, 2018

World MS Day

World MS Day 2018 is on May 30th. 

There are 2.3 million people with MS worldwide. It is likely that hundreds of thousands remain undiagnosed and many lives are affected indirectly (like caregiving for example).

This year's theme for World MS Day is Research, and we hope to bring awareness to the global efforts in research, and how working together is bringing us closer, closer to a cure and closer together.

My favorite MS T-shirt says: Every Connection Matters, a reference not just to the neural connections in our brains, but to the connections between people, countries, and communities. 

More information can be found at the MS International Federation's website,

#WorldMSDay #bringinguscloser

Saturday, May 19, 2018

Welcome New Blogger Ruth

As you know, I stopped blogging a while back. I said everything that I wanted to say, and it was enough. I attempted posting for the sake of posting, but it was straining.

Then I started getting WAY too many spam comments and discovered that I was getting lots of hits from Russia and India, all hits to just one page. Obviously it's not being read by people who need help, but rather by phishing bots.

But I miss the connection I got from the myriad MS blogs, so I'm thrilled that a new friend decided to start blogging.  I encourage you to check out her blog, but only if you are not a bot.

Welcome to

PS I'm not closing this blog because I know my story has helped a few people, and might help some in the future.

Sunday, August 21, 2016

The Kindest Compliment

The kindest thing I heard today…

“Joan, I admire your ability to self-advocate.”

This was at the end of a conversation that started while I was focused on setting up the sound system at church. Normally, it’s no big deal but today’s sermon was about recognizing and letting go of our resistance to change. So the minister set up the room backwards. No big deal, just face the chairs a different way, move the lectern, right?

Well, I was running the sound system, and this is not as easy to modify. The speakers in front of a microphone may cause feedback, and our hardwired cables are not configured to run from the back of the room. So I was thinking on the fly, ad-libbing, adjusting for last minute changes, and doing all those things that no longer come naturally for me. Demands on my brain are exhausting. Change, for me, is exhausting. I recognize that it happens, but I also recognize the physical impact it has on me and I have learned some coping strategies.

A nice woman came up to me and said, “Joan, I need to talk to you but I see that you are busy so I will send you an e-mail.” She has a child with a cognitive disability so she recognizes stress in other people, even when not so obvious. I thanked her for being one of the few people who truly understands when I blow them off. That’s when she surprised me by saying “I admire your ability to self-advocate.” She recognizes when I draw boundaries and doesn’t take it personally.

Now if that had happened at my old job, I would soon be called into the manager’s office to get yelled at for being rude to co-workers.  If that had happened at a family event, there would be a phone call scolding me or an e-mail dripping with disappointment in me.

I’ll share a quote whose source is unknown:

For those who understand, no explanation is necessary. For those who don’t understand, no explanation is possible.

Thus my life motto: “no complaining, no explaining.”

Thank you to everyone who needs no explanation.

Tuesday, June 7, 2016

Selected as one of Healthline's top 23 MS blogs for 2016

Thank you, Healthline, for selecting my blog as one of the top 23 MS blogs for 2016 even though I'm not as active as I once was. They recognize that my MS fatigue is the culprit for my absence in the blogging world. It's nice to be remembered even when MS fatigue limits my activities.

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Wednesday, May 25, 2016

World MS Day

Today is World MS Day.

A day to celebrate global solidarity and hope for the future

World MS Day brings the global MS community together to share stories, raise awareness and campaign with and for everyone affected by multiple sclerosis.  All over the world, people with MS will continue to struggle to get through the day, but we are all working together to ensure that MS does not break us.
Here are things that bring me hope:
1)  Uplifting songs from people with MS, like  "Won't Stop Running"   from Chad King (from one of my favorite duos A Great Big World) that was inspired by his mantra after being told he would be in a wheelchair in seven years
or "I Can Do This" from David Osmond which gave me a mantra when I was having a rough patch - you can read about that HERE.

2) Friends who are willing to do extreme things, like Julia who is heading out in two days to Bike the US for MS. She and fellow bicyclists will ride from Bar Harbor, Maine, to Seattle, Washington to raise awareness and funds for MS. Julia has raised $5,660!

3) Bluebirds that come back to nest every year.

4) Knowing that I am not alone.

Monday, May 9, 2016

Happy Unmothers’ Day

(This is a re-post from 2008. I have noticed a lot of mothers who
find Mother's Day to be too much work, and would also like to have
an "UnMother's Day." This post is not for them.)

To the many women who do not have children, I wish you a Happy Unmothers’ day.

Whether you are child-free, or childless by choice or circumstances beyond your control, I recognize you on this day.

You will not receive chocolates, flowers, or be taken out for brunch; you will not receive a pretty card or get a phone call; but at the same time you will not be disappointed if you do not receive special attention.

In my eyes, you are still a valued member of society and worthy of honor.

Friday, March 25, 2016

Grateful For Bike Across the US For MS

As you may know, my MS fatigue has worsened and I am no longer able to captain our beloved (and famous) MS walk team, the Wheeler's Wobblers.  Although I don't have a lot of energy to fundraise, a local friend certainly does. 

Julia van der Veur is going to bicycle across the US to raise money for MS in May. So if you are interested in continuing to donate to the MS cause, I’d like to suggest that you support Julia in her ambitious goal to raise $4,295 (a dollar a mile).

Julia is riding with an organization called “Bike the US for MS,” and will be riding the Northern Tier from Bar Harbor, Maine, to Seattle, Washington beginning May 28th.  Monies raised go to the National MS Society’s NOW program for research, as well as to three MS centers. Bikers stop along the route to perform service projects for people living with MS, including home modifications.

To donate to Julia via credit card, click on her page and press the orange button to donate:

If you prefer to send a check, make a check out to Bike the US for MS (with Julia van der Veur in the memo line) and mail to: Bike the US for MS, Box 10001, Blacksburg, VA 24062.

I want to just express my gratitude to Julia for helping to raise money for MS research and programs.

Thursday, November 19, 2015

A Final Thanks for Your Support

In 2015, with your help, the Delaware area chapter of the National Multiple Sclerosis Society raised almost $2 million through the MS Walks!

I want to thank all of you for helping my MS Walk Team, the Wheeler's Wobblers, to be one of the top fundraising teams in Wilmington and Newark, Delaware. Between the two sites, we raised over $11,270!

This was our sixth but final year. As many of you know, fatigue is one of the most disabling symptoms of MS, and is my most troublesome symptom. The task of being a team captain does require energy, and over the past few years it has become increasingly more difficult for me to sustain the effort, even with help from others. So this was our last year, and I'm glad that we are ending on a high note.

Being a team captain gave me an opportunity to connect with many people in the community and to raise awareness of this disease. It was gratifying to see the outpouring of support.

Remember, "Wheelers wobble but we don't fall down!" But sometimes we just have to step down.

Flashback - Best Team Name in 2011:

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Friday, October 9, 2015

Book Review: "In This Together" by Ann Romney

I just finished reading Ann Romney's book called “In This Together.” Mrs. Romney was diagnosed with MS back in 1998, but you might know her better as the presidential candidate/Massachusetts governor Mitt Romney’s wife. After reading this book, I now think of Mitt as Ann’s husband.

If ever there was a woman who was the complete opposite of me, it would be Ann Romney. She has five children, I am childless by choice. She is a Mormon, and I am a Unitarian/Humanist. She gets tremendous value from being a homemaker; I prefer the corporate project management world where I don’t have to cook. She is a Republican, I am not. She’s comfortable with horses, I am not. She prays; I meditate.

However, our stories with multiple sclerosis are very similar. We were diagnosed within a year of each other, and experienced some of the same frustrations of trying to get diagnosed in the late 1990s. Both of us were told by our neurologists just to wait and see if the disease gets worse because the doctors didn’t know about, understand, or trust the medications that were available. 

While we waited for progression, we both second-guessed ourselves wondering what we had done wrong to cause our problems. We also believed that our self-worth was tied to what we did as opposed to who we were, so our self-esteem plummeted as fatigue took over our lives and we found ourselves doing so much less. Now, we are both in remission, but still have recurring fatigue.

I guess it was about halfway through the book that I realized that multiple sclerosis became a great equalizer. Two women (me, Ann) who appear to be completely different in experiences and interests, turn out to have a common ground in the experience with Multiple Sclerosis. I suspect that if I ever have a chance to meet her for tea, we’d talk for hours. After all, we are both “in this together.”

I will confess that because of our differences, I was expecting to hate this book. Instead, I loved it. I found myself reading for hours, which surprised me because reading is very difficult for me right now. She is so honest about her struggles that I was brought to tears in a few places. I cheered when she, too, came to the realization that our value is not in what we do, but rather in who we are.

After all, we are both “in this together.”

She shares stories of other people who have inspired her, including Paralympians, healers, others who have been through life altering experiences like burns from an airplane crash, friends with brain cancer. All through the book, she recognizes how blessed she is and how lucky she is to have such a strong faith and supportive husband. She isn’t “preachy,” just sharing her experience and story, which I appreciated. The title of the book was inspired by her strong partnership with her husband, and they have truly been "in this together."

All proceeds from this book will be donated to the Ann Romney
Center for Neurologic Diseases at Brigham and Women’s Hospital in Boston, which was opened last October. I recently had the opportunity to ask her why she is supporting a center for MS, ALS, Parkinson’s, brain tumors, and Alzheimer’s instead of just MS. Her doctor, Dr. Weiner, and a colleague, Dr. Selkoe, discovered similarities in the brain functions (or malfunctions) between these diseases.  They realized that rather than a stove-pipe approach to researching these diseases individually, a collaborative approach would be more successful. By combining forces, they would increase opportunities for funding and cross-pollination of research. The five diseases were chosen because of the overlapping relationships between each of these diseases. “The mechanisms in one disease exist in the others,” says Dr. Weiner. All these diseases, including brain tumors, are related to regulatory cells (T-cells).

I think this is an exciting idea, to work collaboratively with other similar disease researchers. It gives me hope, and maintaining hope is one of Ann’s suggestions for coping with this disease.

Be sure to check out her book, now on sale, and be sure to learn more about the Ann Romney Center for Neurologic Diseases.

Additional information: 

Wednesday, August 5, 2015

Why I Don't Like "Like"

Have you ever been in a conversation with someone and felt like they were not listening? Your conversation begins and the other person suddenly takes a deep interest in the dust bunnies in the corner. Or you go to the doctor and explain that you are using mindfulness meditation to help with your panic attacks and he says, "uh huh, that's nice."
"Uh huh, that's nice."
On social media, I've written blogs and micro-blog posts and from some comments it's pretty obvious that the person really didn't read what I wrote. To me, that's the on-line equivalent of not listening. We can usually tell when someone isn't paying attention (not listening) by their irrelevant or off-target comments.

The Facebook "Like" function provides an icon which, with just one-click, informs the writer that you have "liked" their Facebook post. But what does that mean? Did they read the post and find it compelling? Do they agree with you? Do they really "like" what you wrote or is it an on-line equivalent of "uh huh, that's nice?"

Do they really "like" what you wrote or is it an on-line equivalent of "Uh huh, that's nice?" 

In a previous post, I noted that social media brings out aspects of my personality of which I am not proud. I confess that, like many people, I've been guilty of "drive-by" likings: I just bring up my news feed, not really reading a posting but just clicking "like" and moving on.

I don't like the fact that I do that.  

As noted in a recent article in UU World (Unitarian Universalist Association) by Christine C Robinson and Alicia Hawkins titled Listen Thickly, "the world is hungry for sharing soul to soul."
Yet social media sites like Facebook and Twitter are designed for quick connections. Unfortunately, that brings out superficial behavior in me.
Social media is one component of interpersonal communications; let's not make it the only one.
I want to be more authentic in my relationships, even on line. I want to be connected by more than electronics and "drive-by likes." I want to listen thickly rather than listen thinly and I want to be heard.

Social media is the current landscape, and I can't change that. But social media is one component of interpersonal communications; let's not make it the only one.

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Tuesday, July 28, 2015

#ADA25, Stringy-thingies, and Complete Ignorance

Last Sunday (26 July 2015) was the 25th anniversary of the signing of the Americans with Disabilities Act, a civil-rights law that makes it illegal to discriminate against people with disabilities in housing, employment, transportation, public facilities, and telecommunications.

As an advocate for increased awareness for disabilities at my fellowship (UUFN), I thought last Sunday would be a good day to have a conversation around the ADA during the Story for All Ages (aka the children’s story that I've mentioned before).

So I started with a hunk of blue wax that has a stringy-thingy sticking out the top. Yes, it was a candle and the stringy-thingy was the wick. I showed different candles and compared them to an electronic candle that has an artificial wick. Once upon a time, the candles with the stringy-thingies told the candles with the artificial wicks that because the candles with artificial wicks need batteries to function, they had to go to different schools. Because the stringy-thingies didn’t know how long the batteries would last, they wouldn’t hire the candles with artificial wicks. Eventually, the candles with artificial wicks got fed up and wanted to talk to their lawmakers, but they couldn’t get up the stairs. (You can listen to the story here.)

Photo by Pat Field
Of course the kids recognized that this was a silly story. But then I changed the story, and replaced the characters from candles to people, specifically able-bodied vs. people in wheelchairs. That’s when the adults understood the point of the story. The kids still couldn’t relate because they are young and have no memory of a time when people in wheelchairs were denied acceptance to college or denied jobs or housing or were considered a fire hazard. They have no memory of buildings without ramps or elevators or accessible parking spaces.
"Maybe that ignorance is a good thing, meaning that living in a time of such rampant discrimination is in our past to stay."
Maybe that ignorance is a good thing, meaning that living in a time of such rampant discrimination is in our past to stay. But that ignorance might also mean that the fight stops here, which would be bad because we still have a lot of work to do. For example, we need to enforce the ADA better, and we need to increase awareness and understanding.  Here are a few examples of the work still to be done in Delaware:

Mobility:  Only 44% of Delaware’s curbs have curb cuts to allow wheelchairs, scooters, and even strollers to cross the street. (Source)

Hospitalization: When my friend was hospitalized, they put him in a room with a bathroom that was too small to accommodate his wheelchair.

Transportation: Although Delaware does have a Paratransit system, it does not run on Sundays and does not cross county lines. People who wanted to complain during a Paratransit meeting at the state capitol (in the next county) were unable to attend because they could not get a ride.

Churches and places of worship are exempt from the ADA laws, so any work we do to make our worship spaces more accessible and welcoming is a spiritual practice, not a legal one. So is this my new calling?
Photo credit UUA

May the spirit in us rise to the occasion, and may we make more progress in the next 25 years.

Monday, July 13, 2015

A Shot a Day

No, I'm not talking about medication or alcohol. 

While in Chicago for an MS bloggers forum, I was dreading the impending discussion about social media.  I will confess that I have a love/hate relationship with social media. Mostly hate.

Years ago, I was an early adopter of technology and social media sites as part of my different jobs, which required me to stay current on computer technology trends. Back in the 90's, I was using the Internet before AOL launched a flat-rate campaign and crashed all its servers (remember busy signals and phone modems?). I was on Facebook before it monetized and before the mysterious 'like-comment-share' algorithms. I had a My_Space page back when that was cool. I worked briefly with a co-founder of Wikipedia to coordinate a meeting about wikis. I used on-line chat rooms and bulletin boards to learn about Multiple Sclerosis when I was first diagnosed. So I'm not a luddite or technophobe.

If used for good, social media can provide a valuable communication tool to share information.  But social media can amplify our inner narcissist. It definitely brings out the superficial, attention-grabbing baby in me, which I'm constantly fighting. I'm not authentic on Facebook or Twitter, I'm putting out an image. Not "Authentic Joan," but rather "On-line Presence Joan." 

But at the Chicago forum, it was pointed out that social media IS the current landscape, so I decided that I would have to jump in again. I heard a bit of enthusiasm for Instagram, so decided to see what the fuss was about. I found a lot of cell-phone pictures, but also an opportunity for my own creativity. Not a forum to mold an imaginary self, but a forum to reflect what I see.

I decided to post one photo each day (almost) that summed up my day from my perspective, which is why you won't see many pictures of me. It was a challenge, finding just one shot, especially since most of my day is spent napping. You can see the results on my Instagram page. Many pictures also got shared to Facebook and Twitter if I was feeling particularly needy, which I was (social media does that to me!).

Here's a sample of some of my favorites shots.

I called this "Cool Yin and Yang clouds."

I snapped a photo of my reflection in the sliding glass door, and saved this for a day when I didn't feel like I was all together.

After struggling with how to shoot a wild sunflower that popped up in our hedgerow (probably a stray black oil sunflower seed from our bird feeders), I captured a goldfinch picking seeds out of the face.

I still don't enjoy how social media makes me feel, but I do enjoy having this new creative outlet. It's a whole different experience. Thanks for letting me share this with you. (Feeling just a little less needy right now...)

You can follow me on Instagram at


Sunday, July 12, 2015

There Are No Guarantees in Nature

So the Bluebirds didn't win after all. 

While reporting that we had two eggs in our Eastern Bluebird nest, I said that there are NO guarantees in nature.  And today, I discovered that there are now NO eggs in the nest box.

This is not the first time that we've discovered missing eggs.  In fact, about 55-80% of Eastern Bluebird nesting attempts fail (ref: 

As always, there is no evidence to explain what happened: no egg shell pieces, no flattened nest or grass areas, no footprints, no smoking gun. The nest box is mounted on a metal pole protected by a baffle and out in the open. The nest is low in the box so the eggs were deep in the box.

It's possible that wrens or sparrows are the guilty party.

Yet, somehow, life finds a way to go on. So will I.


Friday, July 10, 2015

And the Winner of the Battle Box Is...

... the Bluebirds.  

Catbird demanding airspace rights
For now, anyway. As of 10 July 15, the Eastern Bluebirds have two new eggs in the nest box that was the subject of a custody dispute explained in my last post.  (Although a Catbird has applied for ownership of the airspace on top of the box because it needs a lookout point.)

Carolina Wren
But as we all know, there are no guarantees in nature. The Bluebirds still face threats to their nest and eggs from wrens and Evil House Sparrows. They have to dodge predators like owls and domestic cats. There is competition for food from Catbirds and Mockingbirds. 

Male Bluebird grabbing mealworms for babies.

The Bluebird parents are still feeding their young from the last brood, which takes energy and attention away from the nest. 
Two hungry baby Bluebirds.

So maybe the only guarantee in nature is that it is always changing.

I know this, but often my brain refuses to accept this as a fact. Then discomfort arises when I refuse to make space for change and begin to think and act like I'm a victim, when, in fact, I do have a choice in how I will respond. And sometimes the response is NOT to respond. 

This is something I have to re-learn every day. Every day, I have to start over and make peace with change. One of my favorite quotes (source unknown): "Pain is inevitable; suffering is optional." I choose not to suffer. But tomorrow I will have forgotten that, and will start over. Again.


Sunday, July 5, 2015

Battle Box

Once upon a time, we had a peaceful backyard. (Cue the Disney fairy meadow music.) 

The Eastern Bluebirds had a successful brood in our Bluebird Nest Box and started on a second family; but, Evil European House Sparrows attacked the second nest, destroyed the eggs and chased out the Bluebirds (cue sound track from Psycho). 

In the US, Evil European House Sparrows are not native, are very destructive, and considered a pest. They are one bird species not protected by the Migratory Bird Treaty Act, so we Nest Watchers are allowed to interfere with their nest building and allowed to trap them, but responsibly. Once the Evil House Sparrows were gone, the box was available. (Cue Disney music again.) 

A little House Wren (illegal to harm them, but still a threat to Bluebirds) started to build a nest (out of twigs) in the fresh Bluebird's box.  

But then the Bluebirds came back (cue music from Jaws), and started to build a nest of grasses on top of the Wren's twigs.  

Then the Wren came back and threw out the Bluebird's grasses. 

The Bluebird came back and said, "Hey, where's my stuff and what the h#ll are YOU doing in my house?" and chased the Wren away. 

The battle for occupancy continues to wage. All I can do is watch and hope the Evil House Sparrows don't ruin the plot.

Who knew that bird watching could be this exciting?


Wednesday, July 1, 2015

Hotel Art Tourist

Most people don't notice the artwork on hotel walls.  I do. 
I used to enjoy traveling, but now find it to be physically and mentally challenging, which means that just getting to a hotel room is all the excitement I can take.  

I recently went to the Renaissance Chicago Downtown Hotel for the MS Bloggers Forum, sponsored by Novartis (they provided airfare, travel, hotel, and meals).  While there, a number of participants explored Chicago, wandered along the river, visited the Navy Pier and the Millennium Park.  

I, on the other hand, was just too spent from the travel and conference, so chose to limit my explorations to the hotel lobbies. And what a thrill!  The hotel completed a major renovation by the Gettys Group in May that included art capturing the magic of a big city: "...small pieces coalesce to create a picture."  It was the hidden elements that provided moments of giddy delight for me.

Take, for example, the picture of the huge taxi behind the registration area:
It's pretty obvious, right?

But the excitement comes when you get up close and see that...

... the taxi picture was made from pencils!
I spent a lot of time considering a 3-D piece on the second floor lobby.  Take a look and see if you can read the message (I had to ask the hotel staff):

The answer is:

So even though I couldn't visit the normal tourist spots in Chicago during my brief visit, I was treated to an amazing art exhibit that gave me the flavor of the city, and an exhibit that I suspect many people just don't notice.

PS - I did get Lou Malnati's deep dish pizza. Yum!


Friday, June 26, 2015

Insecurities: Arise!

There is nothing like being with some of the best MS bloggers and writers in the US to stir up my insecurities.  So when I'm insecure, I blog.

In a few hours, I'm heading to the Philly airport to go to Chicago for an all-expenses paid, Novartis-sponsored MS Bloggers Forum where I'll have a chance to schmooze with some of my favorite MS writers and activists. This is the second time I've been invited, and I'm honored to be asked to come back.  I don't know the complete line-up of luminaries, but here are a few that I'm excited to meet or to see again.

While I'm waiting for the car to pick me up, I'm re-reading Matt Cavallo's "7 Steps to Living With a Chronic Illness" and Yvonne deSousa's very funny "MS Madness."  I'm looking forward to seeing my vibrant guru Jon Chandonnet, whose book, "Shadow Summit," I reviewed back in 2013. I can't wait to see Lisa Emrich again, whose blog "Brass and Ivory" and her work with,, and numerous other health groups helps to make sense of medical information. Then there's Dave Bexfield of Active MSers fame, whose humor makes me forgive the fact that he's so darn active in spite of MS.

But while I wait and realize who I'm going to see, I feel like Bill and Ted (Wayne's World) when they are about to meet Alice Cooper, and my brain keeps chanting their famous line: "We're Not Worthy".  

See you in Chicago, blogger buddies!



Monday, June 15, 2015

The Origins of "The Flickering Lamp"

Until Sunday, I thought the most frightening thing in the world was to be the person who reads a children's story (for all ages) during our church services. This Sunday, though, I realized that the most frightening thing in the world was to be the person who reads a children's story (for all ages), but without the story.

Obviously, I'm exaggerating about what frightens me (a little). But what made me nervous this Sunday was that I didn't plan to "read" a story to the children; instead, we had a "conversation" in front of the congregation (anyone remember Art Linkletter?).

Our theme was Body and Soul, so I chose to talk about the Body (left the Soul to the minister) and how some people have hidden broken body parts (aka invisible illness). Other people can't see the broken parts so might think that a person who acts differently is faking or just wanting attention.  I brought along a little table lamp to illustrate a device that has a short in its cord (hidden broken body part) which causes the light bulb to act differently. Sometimes the bulb lights up, sometimes it doesn't, and sometimes it flickers.  No, the lamp is not lazy, it's just wired differently.

The children were very attentive, engaged, and so funny.  "What do you think is wrong with the lamp? I asked. "It's bored," was the first response. The rest of the conversation was just as creative, and in the end the children suggested that we need to be nice to people even though they might act differently.

After the service, more than one adult commented that they noticed a similarity between what I've told them about Multiple Sclerosis and the poor flickering lamp. So for my church friends who didn't already know, the inspiration for last Sunday's children's story, which Rev. Andrew Weber named "A Flickering Lamp," is my e-book titled  A Short in the Cord.

A Short in the Cord:
A Retrospective on Living and Coping with MS

You can download or read an MS Word version by clicking on the link.

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Tuesday, June 2, 2015

The Final Final Results from the MS Walks

UPDATED figures are in, and the Wheeler's Wobblers raised $11,270.72 between our two 2015 MS walks in Wilmington and Newark, Delaware. You did a great job again this year, and I want to say "Thank you for walking, donating, and cheering!"

Because this is my last year as team captain, (feel free to volunteer if you want all the fame and glory), I thought I'd recap and give your our final results.  

In the six years that the Wobblers participated in the Delaware MS Walks, we raised almost $55,000. 

We grew from 8 teammates to almost 50. We expanded to participating in two cities. We had walkers from as far away as Pittsburgh (PA), Baltimore (MD), Landenberg (PA), and Middletown (DE).  We had congressmen and doctors (medical and PhD) and people with MS and people who didn't know anything about MS. 

We had fundraisers, a wine tasting, dinners at Ruby Tuesday, and pendant sales. We had corporate sponsors and for a few years had a team t-shirt. 

Of course, what made us famous was our huge team sign that made us the envy of all who gazed upon it (thanks to The Husband).

But most important, we made a lot of connections with the community and had a blast doing it.

Thank you, everyone. And remember, "Wheelers wobble but we don't fall down thanks to YOUR support!"

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Friday, May 15, 2015

We'll Pause Now for This Station Break

2015 has been a whirlwind already.  As I noted in an earlier blog ("I Can Do This"), I over committed to activities and, believe it or not, I am STILL paying for it physically and mentally.  It was all good stuff, but even the little tasks that only take one or two hours a week or happen only once a month will add up to a demanding, energy-draining schedule. 

Just yesterday, I forgot my fundamental rule for personal energy management: "Do no more than one event a day."  I had blood drawn in the morning, then saw my PCP in the afternoon, then had to spend time at the pharmacy. Sounds like no big deal, but it exhausted me and I had to cancel an evening event (but it's only once a month).

Okay, Universe, message received.

Now that the MS Walks are finished (we raised $11,000!) and I have very few hanging commitments, I'm clearing my schedule to spend some time recharging and reflecting. Coincidentally, blogger Cathy Chester (from "An Empowered Spirit") feels the same way and wrote a beautiful post called "Renewal: It's Time For Me to Take a Short Break." She's more eloquent on the subject, so I'm referencing her post here:

As Cathy says in her post

"The year 2015 has been filled with many challenges for us and I need a chance to breathe. Like the budding flowers in our garden I, too, want a chance to feel renewed."

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Monday, May 11, 2015

Wheeler's Wobblers MS Walk Results


We raised $11,000 (and 72 cents). WOW is all I can say over and over. THANK YOU!

Wilmington (21 walkers): $6,777.72
Newark (34 walkers): $4,223  


Saturday, May 9, 2015

Leap and the Net Will Appear

Quote from John Burroughs, American author and naturalist:
"Leap and the net will appear"
Today, this Eastern Bluebird finally got up the courage to leap from the comfort and safety of its nest box, where it had hatched about two weeks ago. But on the way out, it stumbled and caught itself on the edge of the box. After flapping madly, it landed on the top of the baffle under the box.  It finally flew away to the safety of the trees while its sibling watched from inside the box.

It takes courage to try something new, to leave the comfort of the known.  
But sometimes that effort will bring us a better view.  


Friday, May 1, 2015

Diverse Groups - One Goal

Our Newark (Delaware) Wheeler's Wobblers MS Walk team is made up of diverse groups that at first glance seem to have nothing in common.

For example, the 5th and 6th grade "Roots and Shoots" children from the Unitarian Universalist Fellowship of Newark will be walking along with members from the University of Delaware wrestling team;

Dax, a dog from the Canine Companions for Independence we be walking alongside a woman who has run numerous marathons;

Friends from the Newark Main Street Multiple Sclerosis support group and Middletown Lunch Bunch MS support group will be walking (rolling/being pushed) alongside a woman from western Pennsylvania.

What brings them all together?  The common desire to see an end to Multiple Sclerosis.

It's not too late to be a part of this great movement.  You can join us in Newark, Delaware, Buffalo Wild Wings on Sunday, May 3.  You can still donate to the team or to a walker.  Just go to this site to get details: