Wednesday, April 7, 2010

CCSVI Webforum - What could it mean for people with MS?

I registered to attend this webforum. Be sure to submit questions in advance if you are interested.   -Joan

CCSVI, or chronic cerebrospinal venous insufficiency, is the exciting new topic in the MS world.  With CCSVI, the veins that drain blood from the brain are blocked or narrowed.  Dr. Zamboni from Italy discovered that, in patients with MS, this condition is common and believes that this is the cause of MS lesions.  He has been doing procedures to open the veins, such as angioplasty or inserting stents.  I have been monitoring the CCSVI Tracking website and results seem to be mixed so far, but further study is on-going.
On April 14, 12 p.m. eastern time, the National Multiple Sclerosis Society and the American Academy of Neurology (AAN) will hold a live 90-minute web forum for journalists and the general public on the topic of chronic cerebrospinal venous insufficiency (CCSVI) and what it could mean to people living with multiple sclerosis. The event will cover what is currently known about CCSVI and what yet needs to be determined in order to establish what its relationship to the MS disease process might be and whether surgical intervention can improve the disease course. The live Web forum will feature the following panel:

•Dr. Paolo Zamboni, Director, Vascular Diseases Center, University of Ferrara, Italy
•Dr. Robert Zivadinov, Associate Professor of Neurology at the University at Buffalo, State University of New York
•Dr. Andrew Common, Radiologist in Chief at St. Michaels Hospital, University of Toronto, Ontario, CA
•Dr. Aaron Miller, Professor of Neurology and Director of the MS Center at Mount Sinai, New York, member of the AAN Board of Directors, Chief Medical Officer of the National MS Society

Register now online (12 p.m. ET April 14) and ensure your system will support the live Web forum player. Questions for the panelists can be submitted online in advance of the live Web forum through Facebook or Twitter, or in real time through the live Web forum player. The recorded webcast will be available online after the event for those who are unable to attend.

Beth Clark
National Multiple Sclerosis Society
Broadway Station
900 South Broadway, Suite 200
Denver, CO 80209

1 comment:

  1. NMSS is doing something very positive here
    Ken Torbert